PREVAIL Conference Program 2014 Annual Conference on Independent Living July 28-31 Grand Hyatt, Washington, DC Presented by: the National Council on Independent Living Welcome & Contents Dear Advocates, This is a historic time for Independent Living. After decades of work by NCIL leaders and advocates across the nation, it is with great pride that we convene this week to celebrate the passage of the Workforce Innovation & Opportunities Act, to plan for the future of America’s Independent Living Program, and to continue our decades-long pursuit of independence for all Americans with Disabilities. The future is bright and it is ours for the taking. We are embarking on new territory, and we must rely on our core principles. Consumer control works when we make it work, and to accomplish that, we need your voice. I encourage you to attend WIOA-related events and make your voice heard. The Independent Living Movement is strong because of each of us and the commitment we live every day: to create a world in which people with disabilities are truly valued equally and participating fully. And together, we will prevail. I would like to thank the NCIL Board and staff for their tireless efforts to bring about this opportunity and our generous sponsors for making this event a success! Please take a moment to stop at the exhibit fair and review the advertisements in this program, as each of these contributors has shown a dedication to NCIL and the advancement of Independent Living through their donations. I would especially like to thank our sponsors Centene, AmeriGroup, Google, IndependenceFirst, United Healthcare, Comcast, AARP, Verizon, Pride Mobility, Amgen, Mobility Ventures / MV-1, Accessible Bath Technologies, ABC Medical, American Association for Homecare, Arizona Bridge to Independent Living, HSC Foundation, National Collaborative on Workforce and Disability for Youth, ILC of North Shore & Cape Ann, RCIL, and Yoshiko Dart. Kelly Buckland Executive Director National Council on Independent Living "Injustice anywhere is a threat to justice everywhere" Martin Luther King, Jr. Contents: -Schedule of Events -Workshop Guide and Poster Sessions -Lodging & Transportation -Access, Accommodations, & Resources -NCIL Regions by State -Environmental / Chemical Sensitivities -General Conference Information -Speakers -Sponsors & Advertisements Image: Map of Grand Hyatt Washington, Independence Level (5B) Schedule of Events Saturday, July 26 NCIL Board Meeting: 9:00 am - 3:30 pm Constitution CDE (Constitution Level) Anyone is welcome to attend the final meeting of the departing Board of Directors on Saturday, July 26 and the inaugural meeting of the newly elected Board on Friday, August 1. If you plan to attend either of these events and require an accommodation, please contact tim@ncil.org. Sunday, July 27 Registration Open (Independence Foyer): 12:00 pm - 5:00 pm Pre-Conference: 1:00 pm - 4:30 pm Independence Ballroom The Pre-Conference will focus on the US Department of Labor’s proposed companionship rules, Direct Care Worker overtime, the ACA insurance mandate, and how they could affect people with disabilities, our attendants, and Centers for Independent Living. The Pre-Conference will be broken down into two parts. We will begin with an in-depth working session designed to help participants understand the impact of the companionship rule changes on their state's system for providing community-based long term services and supports, with an opportunity for participants to interact directly with DOL staff and other experts. Then we will explore strategies for minimizing the negative impact of the rule changes on people with disabilities - particularly those at risk of institutionalization, our attendants, and Centers. Presented by: Bruce Darling is the President / CEO of the Center for Disability Rights and the Regional Center for Independent Living in Rochester, New York. Bruce has been a disability advocate for over 25 years and is best known for his work with ADAPT. Orientation Session: 5:00 pm - 6:00 pm Independence A NCIL offers this general session for new NCIL members and Conference attendees. Join us to gain greater insight into NCIL’s history, our Annual Conference, and formal procedures such as voting at the Annual Council Meeting. The Board of Directors will discuss preparations for the March and Rally and much more! Monday, July 28 Registration Open (Independence Foyer): 8:00 am - 5:00 pm Opening Plenary: 9:00 am - 10:00 am Independence Ballroom A representative of the President’s Administration will offer a national plan of action to demand and win full implementation of our civil and human rights. Don’t miss this exciting 2014 Annual Conference opener! Legislative & Advocacy Update: 10:15 am - 11:30 am Independence Ballroom Get up-to-date information on the progress of NCIL’s advocacy efforts from the Chairs of NCIL’s Legislative & Advocacy Committees. The Chairs will review and answer questions about NCIL’s advocacy talking points so participants are fully prepared for their Congressional visits on Tuesday. Michael Gamel-McCormick and Bill Knudsen from the Senate HELP Committee will speak on the Workforce Innovation & Opportunities Act. Preparing for the Day on the Hill: 11:30 am - 11:45 am Independence Ballroom Learn the ABCs of NCIL’s March & Rally, including where to meet, what to bring, important information about our route, what to do in case of an emergency, and how to get home after your Congressional visits. Concurrent Workshops I: 1:00 pm - 2:15 pm See page 10-11 for descriptions, presenters, and locations. Regional Caucuses: Regions 6-10, 2:45 pm - 3:45 pm Regions 1-5, 4:15 pm - 5:15 pm This is your opportunity to strategize for your Congressional visits. Each state should decide exactly who will attend which meeting to ensure that every legislator is visited. A list of regions by state is available on page 23. Please note the separate times scheduled for Regions 1-5 and 6-10. Regions 1 & 6: Independence BC Regions 2 & 8: McPherson / Franklin Regions 3 & 7: Independence A Regions 4 & 10: Independence HI Regions 5 & 9: Independence DE Diversity Mixer: 6:00 pm - 8:00 pm Independence A Join the Diversity Committee and its Caucuses for networking and light refreshments at the inaugural party of the 2014 Annual Conference! Awards will be presented to advocates from across the nation. Tuesday, July 29 Organize for the March: 9:30 am - 10:00 am 11th & G Streets NW Participants should assemble at 9:30 a.m. at G and 11th Streets, NW. The March will begin promptly at 10:00 a.m. March to the US Capitol: 10:00 am - 11:00 am NCIL members march from the Grand Hyatt to Capitol Hill demonstrating support for the independence of people with disabilities! A map of the March route and rally location is available in the Advocate’s Guide to the Hill, included with your conference materials. Lunch: 11:00 am - 11:30 am Capitol Reflecting Pool / Rally Site Bag lunches will be provided to conference registrants. 2014 Rally at the US Capitol: 11:30 am - 12:30 pm Capitol Reflecting Pool Marchers will converge in front of the Capitol Building for an empowering rally featuring a number of speakers, including leaders in the IL Movement and elected officials working on the issues we care about most. Capitol Hill Visits: 1:00 pm - 5:00 pm Participants are encouraged to meet with their elected officials to discuss issues important in their districts. Congressional contact information is available in the Advocate’s Guide to the Hill, included in your conference materials, or you can call the U.S. Capitol Switchboard at (202) 224-3121 and ask for your Senators' and / or Representative's office. Participants must arrange their own services / accommodations for Hill Visits on Tuesday, July 29. Contact angela@ncil.org with any questions. Wednesday, July 30 Registration & Exhibits Open (Independence Foyer): 8:00 am - 5:00 pm Concurrent Workshops II: 9:00 am - 10:15 am See page 12-13 for descriptions, presenters, and locations. Exhibit Fair: 10:15 am - 12:00 pm Independence Foyer Spend time browsing the products and services offered by our exhibitors, many of which are your fellow NCIL members. This conference would not be possible without the generous support of our exhibitors and sponsors. Film Screening - Homesick: Living with Multiple Chemical Sensitivities: 10:30 am - 11:30 am McPherson / Franklin Homesick is an hour long documentary by Susan Abod. Susan goes on the road to find out how people around the country are coping with MCS and dealing with the difficult problem of finding safe housing. She visits their homes and witnesses their daily struggles. They come from all walks of life and live in diverse dwellings that include tents, a house on stilts, and a teepee. This film screening takes place concurrently with other events. Awards Luncheon: 12:00 pm - 2:00 pm Independence Ballroom Join us to celebrate and honor this year’s award winners! Awards will be presented over lunch. Annual Council Meeting: 2:30 pm - 5:30 pm Independence Ballroom Attend the Annual Council Meeting to vote for Board members and resolutions that will guide NCIL in the coming years. Elections will be held for Vice President, Secretary, Diversity Chair, and 3 Members-At-Large. Winners of elections for Representatives of Regions 2, 4, 6, 8 and 10 will be announced. ADA Celebration: 8:00 pm - 11:00 pm Independence Ballroom Come ready to join your fellow advocates in merriment and don’t forget your dancing shoes. The DC Transit Band will provide live music. Light snacks and non-alcoholic beverages will be available free of charge, with a cash-bar. Thursday, July 31 Registration & Exhibits Open (Independence Foyer): 8:00 am - 5:00 pm Concurrent Workshops III: 9:00 am - 10:15 am See page 14-15 for descriptions, presenters, and locations. Concurrent Workshops IV: 10:30 am - 11:45 am See page 16-17 for descriptions, presenters, and locations. Concurrent Workshops V: 1:30 pm - 2:45 pm See page 18-19 for descriptions, presenters, and locations. Legislative Debriefing: 3:00 pm - 4:30 pm Independence A This session will summarize the advocacy accomplished during the week and develop a plan of action that can be implemented at the national, state, and local levels during the coming year. IL leaders from across the nation will lead a discussion on the changes coming to America’s Independent Living Program and begin developing strategies for action. Closing Plenary: 4:30 pm - 5:15 pm Independence A Kathy Greenlee, Administrator of the Administration for Community Living and Assistant Secretary for Aging, will deliver a plenary session on advocacy issues important to the NCIL membership and energize the crowd before we return to our districts and prepare to make change. Friday, August 1 NCIL Board Meeting: 10:00 am - 12:00 noon Independence Level Anyone is welcome to attend the inaugural meeting of the newly elected Board on Friday, August 1. If you plan to attend either of these events and require an accommodation, please contact tim@ncil.org. Workshop Guide The following workshops have been selected by NCIL’s Annual Conference Subcommittee. Great care has been taken to ensure that the workshops are, as a whole, relevant to this year’s Conference theme and valuable to a cross-section of CIL, SILC, and IL Association staff, board members, consumers, and other IL advocates. Workshops are classified by target audience: Front Line Staff & Consumers, Advocates & Project Directors, or Executive Directors & Board Members. Workshops are also classified as Newcomer, Experienced, or Appropriate for all levels at the end of each description. Resource Development Track -NCIL seeks to provide the best information to CILs, SILCs, and IL advocates on ways to generate new revenue to support our organizations and advocacy. This year’s Resource Development track gives attendees the opportunity to attend workshops throughout the week of the conference to improve their skills and knowledge of resources for fundraising, development, and revenue generation. Attendees are welcome to pick-and-choose the workshops that interest them most, but if your organization could use additional funding, you’ll want to take a close look at these workshops. Workforce Innovation & Opportunities Act Workshops -NCIL’s conference is -the- place to learn about WIOA, the new Independent Living Administration, and the IL Program’s move to the Administration on Community Living at the Department of Health & Human Services. These two workshops will focus on the forthcoming ILA and the transition to HHS. Representatives from RSA and HHS have been invited to sit on a panel with advocates from NCIL who have detailed knowledge of the legislation. The panel will answer your questions and share everything they know about IL’s transition. Poster Sessions A poster session is the presentation of research information with an academic or professional focus. Posters are displayed throughout the NCIL Conference space at the discretion of the presenter. The Convention on the Rights of Persons with Disabilities (CRPD) This poster focuses on the United States International Council on Disabilities’ advocacy and education efforts for the UN CRPD. The poster will highlight the general principles of the treaty as well as specific articles that address independent living and full inclusion in society. Drop by to view the CRPD poster and to meet a USICD staff member who can provide more information about why the CRPD is important to the American disability community. As the United States moves towards ratification of the CRPD following its signature of the treaty in 2009, it is an exciting time to join this global movement! Concurrent Workshops I: Monday, July 28, 1:00 pm - 2:15 pm Rehabilitation Act Legislative Update Independence A Workforce Innovation & Opportunities Act Workshop NCIL applauds the bipartisan, bicameral effort that produced the Workforce Innovation and Opportunities Act. NCIL is especially pleased with the Reauthorization of the Rehabilitation Act included in WIOA. The transfer of the IL Program, NIDRR, and the Assistive Technology program to the Administration on Community Living within HHS will allow IL to flourish and will be better equipped to streamline how people with disabilities can impact policies that affect them. This session will update participants on latest breaking news and review specific components of the newly Reauthorized Rehabilitation Act. Presented by: Kelly Buckland, NCIL Executive Director; Shannon Jones - After serving 18 years as the Executive Director of the Kansas SILC, Ms. Jones currently serves as Co-Chair of NCIL’s Rehabilitation Act / IL Funding Subcommittee. She remains active in advocating for the development and implementation of laws and policies that protect the rights of persons with disabilities. Youth are the Future: Continuing a Legacy of Empowerment, Advocacy, and Change Independence B & C This workshop will focus on the importance of youth involvement in CILs and continuing our community’s tradition of advocacy. The panel will discuss best practice strategies for recruiting and mentoring youth, developing and encouraging leadership skills, and incorporating new leaders as part of the fabric of CILs. The interactive discussion will include engaging youth, ways to develop youth leadership and advocacy skills, and how these efforts are proving successful at various CILs throughout Pennsylvania. Topics will be discussed from the perspective of youth leaders from the PA Youth Leadership Network and staff from various CILs throughout the state. Target Audience: Frontline Staff & Consumers. Knowledge Level: Experienced. Youth Presenters include: Ali Hrasok, President of the Pennsylvania Youth Leadership Network (PYLN); Gabriel Smaglik, PYLN Board member and Anthracite Region CIL volunteer; and Everett Deibler, PYLN Past President and Leadership Development Coordinator at the Lehigh Valley CIL. This presentation will also feature Seth Hoderewski, Director of Transition Services at Lehigh Valley CIL, and Diana Morris Smaglik, Marketing / Special Projects Director for the Anthracite Region CIL. What Does Person-Centered Planning Mean for the IL Paradigm? Independence D & E The NCIL ADRC Task Force with Administration for Community Living and CMS will provide a forum on how the new HCBS rules on person-centered planning enhance and are different from consumer-driven, consumer-controlled, and the IL values of self-determination, dignity of risk, autonomy, and right to learn from our mistakes. Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: Mary Margaret Moore, Executive Director of ILC of the North Shore and Cape Ann, Co-Chair of the NCIL ADRC Task Force, NCIL Board Member, and President of Aging and Disability Resource Consortium of the Greater North Shore, has been a life-long advocate for social justice and disability civil and human rights. Shawn Terrell, Health Insurance Specialist at the ACL, has been working in the long term services and supports arena for 15 years. His primary focus is on developing person centered-planning capacity in states and quality improvement in HCBS systems. Linda Joyce is the Deputy Director of the Division of Long Term Services and Supports at CMS. She has 30+ years of experience working with individuals with disabilities. Basic Fundraising Tools Anyone Can Use Independence FGH & I Resource Development Track Fundraising is a team sport, and everyone can help. This session will provide you with 5 basic tools that every CIL and SILC should be using to bolster their fundraising. The best part is that you probably already have the most important resources at your disposal already. Websites, compelling consumer stories, board members, and active donors can all be leveraged to help you raise more money for the important work you do. Target Audience: Executive Directors & Board Members. Knowledge Level: Appropriate for all levels. Presented by: Bianca Barr is the Manager of Grants & Planned Giving for Access Living. In that capacity she maintains the organization’s grants calendar, writes grant related correspondence including proposals and reports, prospects for new sources of funding, and maintains relationships with Access Living’s foundation and corporate donors. Bianca also works with the Director of Development to secure deferred gifts and inform donors of the benefits of using planned giving vehicles. Transit and Disability Rights Advocates: Stronger Together Franklin / McPherson Join NCIL members and Americans for Transit in this interactive workshop focused on why public transit matters and how transit and disability rights advocates can work together to win better public transit service in your community. Americans for Transit was founded to create, strengthen, and unite pro-transit organizations across the country. In many local campaigns, people will disabilities have led the charge, insisting that great public transit is a human right and political necessity. Join us for this engaging session, where we will equip you with tools to take on this issue locally! Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: Andrew Austin is the founding executive director of Americans for Transit, working to build a stronger transit rider and advocacy movement across the United States. A political hack turned transit nerd; he previously was the field director at Transportation Choices, in Washington State, where he led numerous transit ballot measures and organizing campaigns. Clifton Perez serves as the Systems Advocate for the ILC and Co-Chairs the NCIL Transportation Subcommittee. Concurrent Workshops II: Wednesday, July 30, 9:00 am - 10:15 am Quality Beyond Compliance: Taking Charge of Your CIL's True Potential Independence A Weak, ineffectual, or dishonest Centers have the potential to give all of us a bad name, contributing to society's negative perceptions about people with disabilities. Quality matters. We are a movement that seeks to change our world. Mediocre Centers will not facilitate change. What are the tools that can aid CILs in moving into a strong position of quality rather than falling short of compliance? Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: Darrell Jones is Program Coordinator of the IL-NET and New Community Opportunities national training and technical assistance projects for CILs and SILCs at Independent Living Research Utilization (ILRU). She has extensive experience in developing curricula and designing trainings for CILs and SILCs and has coordinated training and technical assistance at both NCIL and ILRU for the past thirteen years. Paula McElwee is Technical Assistance Coordinator for the IL-Net, assisting CILs and SILCs with technical assistance needs and supporting those in need of intensive support, typically due to recent on-site reviews by state or federal funders. Richard Petty is the director of the IL-NET and New Community Opportunities Center at ILRU, overseeing the national delivery of training and technical assistance to CILs and SILCs. He has also served as director of a CIL in and was a founding member of the AR SILC. ADA25 Independence B & C This Plenary will explain the history and status of The ADA Legacy Project and ADA25. It will include details about the ADA Legacy Tour, a summary of activities related to the 25th Anniversary of the ADA, and ideas for local celebrations. Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: Mark Johnson, M.Ed. serves as the Director of Advocacy at the Shepherd Center in Atlanta. Mark is an ADAPT founder and winner of several awards, including Georgia Trend Healthcare Hero (2009), Betts Award (2007), Justin Dart Jr. Spirit of ADA (2001), and New Mobility Person of the Year (2001). Youth Transition: Practice Makes Perfect Independence D & E Life is full of transitions, and one of the more remarkable occurs when youth go out in the world as young adults. When the individual has a disability, it's especially helpful to plan ahead for that transition. This workshop will give you some resources and supports to increase youth's ability to pursue higher education, employment, or independent living, all of which are reinforced by playing a 'real life' decision game, designed by our Youth Transition Team. Come, learn, have fun, and take away some very useful concepts and ideas. Target Audience: Front Line Staff & Consumers. Knowledge Level: Newcomer. Presented by: Gail Taylor is Sr. Program Manager of CIL Services at Three Rivers CIL in Pittsburgh, PA and she also served as a Specialist for the program Living Well with a Disability, launched in 2008. Gail is active on disability related committees and focus groups, is a Board member for Allegheny Independence House, Landmark Court, and Independent Housing Resources East Inc. Finding and Securing Corporate and Foundation Funders Independence FGH & I Resource Development Track This session discusses the process of finding and securing funding from corporate and foundation funders, from the identification of potential funders to the solicitation of those funders and beyond. Whether your organization has dedicated fundraising staff or not, this session will help you effectively and efficiently select the right corporations and foundations to solicit for support by covering the fundamentals of prospecting, using technology, analyzing guidelines, developing relationships with grantmakers, and soliciting grantmakers whose priorities align with your mission. Target Audience: Executive Directors & Board Members. Knowledge Level: Appropriate for all levels. Presented by Bianca Barr is the Manager of Grants & Planned Giving for Access Living. In that capacity she maintains the organization’s grants calendar, writes grant related correspondence including proposals and reports, prospects for new sources of funding, and maintains relationships with Access Living’s foundation and corporate donors. Bianca also works with the Director of Development on the Planned Giving Program to secure deferred gifts, and inform individual donors of the benefits of using various planned giving vehicles. Bianca identifies as a person with a disability and lives in Chicago with her 2 savannah cats, Hall and Oats. Protection and Savings through Discounted Insurance Franklin / McPherson NCIL members have access to discounted programs through National Financial Partners. National Financial Partners is a National Firm specializing in employee benefits; property and casualty; and retirement. Available only to NCIL members, join this session to learn how your CIL or 501(c)(3) SILC can save significantly on D&O coverage and other insurance products. New to NCIL this year, NFP offers NCIL members enhanced benefits, great customer service, and expertise in regards to compliance and HR issues. Target Audience: Executive Directors & Board Members. Knowledge Level: Newcomer. Presented by: Stephanie Cohen - Since co-founding the firm Golden & Cohen in 1992, Stephanie has helped her company grow into a highly successful female-run health care benefits firm. With more than two decades of experience in small group health insurance, disability programs and life insurance, she was a finalist for the Ernst & Young Entrepreneur of the Year Award, and has served on the prestigious United HealthCare, Coventry, Aetna and Kaiser Broker Council. She also has been a member of the Women’s President Organization, the District of Columbia Insurance Commissioner Advisory Council and The Greater Washington Health Underwriters. Concurrent Workshops III: Thursday, July 31, 9:00 am - 10:15 am What Does Self-Direction Look Like After ACA and DOL? Independence A The Affordable Care Act and recent changes to the Companionship Exemption with the Department of Labor both have consequences for consumer self-direction and self-directed programs. Join the presenters to get an overview on the implications of these laws, and enter a discussion about strategies advocates can use to maximize consumer control and self-direction under the regulatory change. Target Audience: Executive Directors & Board Members. Knowledge Level: Experienced. Presented by: Mike Oxford is the Director of the Topeka IL Resource Center, a national ADAPT organizer, and NCIL Past President. He has been involved in research, consulting, and advocacy to foster consumer control of home and community long term services and supports and to create a permanent, national, mandatory home and community service and supports program for many years. Lee Schulz has served for 27 years as President / CEO of IndependenceFirst in Milwaukee. A budget of $36 million and staff of 1,700 has required attention to the ACA and its impact on CILs and on consumer control related to caregivers. Best Practices in Promoting Employment and Economic Advancement through Partnerships between CILs and AJCs Independence B & C LEAD Center, in partnership with NCIL and the National Association of Workforce Development Professionals, is working to expand (a) effective participation for people with disabilities in the workforce development system; (b) connections between employment and economic advancement goals of people with disabilities through services / supports available in American Job Centers (AJCs); and (c) knowledge about community supports, benefits planning, and accommodations to improve employment outcomes for job seekers with disabilities. This presentation will provide information about best practices field tested at CILs and how to access user-friendly resources developed and piloted by CILs. Target Audience: Advocates & Project Directors. Knowledge Level: Appropriate for all Knowledge Levels. Presented by: Rebecca Salon is Project Director for the LEAD Center. Dr. Salon is a recognized national leader in policy and program development with an emphasis on cutting edge demonstrations that promote employment and economic self- sufficiency for individuals with significant disabilities. Are You Ready? Independence D & E Historically, those responsible for emergency preparedness and response on federal, state, and local levels have done a poor job of protecting and providing services for individuals with disabilities during and after disaster. Come learn what disability advocates are doing to change that and how you can get involved! There are resources available to assist CILs, and the individuals they work with, to better prepare for disaster. Come learn what those resources are and how to locate them! Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: Christy Dunaway is the Director of LIFE of Mississippi, Inc. She has had personal and professional experience with disasters, starting with Hurricane Katrina in 2005. Since then Christy has become actively involved in disaster preparedness and response in the state and serves on the At Risk Task Force. Mark Derry is NCIL Vice President and President of Eastlake Derry and Associates - Accessibility Solutions. The firm specializes in accessibility, universal design, and ADA consulting and training. For-Profit: Antagonistic to the Precepts of IL or Its Lifeline? Independence FGH & I Resource Development Track CILs need to plan for the uncertainty of the continuation of historical funding sources. One way to do that is to examine the opportunities that exist in establishing a for-profit affiliate. The workshop will explore the use of a for-profit affiliate to advance IL principles; what the legal and practical differences are between a for-profit and not-for-profit entity; how to organize, staff and capitalize a for-profit entity; how to identify existing services that can be offered for-profit and opportunities that exist under the Affordable Care Act and the Medicaid alignment initiatives; and the importance of taking advantage of existing "disabled business enterprise" programs. Target Audience: Appropriate for all Audiences. Knowledge Level: Experienced. Presented by: Andres Gallegos is a corporate, healthcare and disability rights attorney and partner at Robbins, Salomon and Patt, Ltd. in Chicago. Mr. Gallegos spearheads his firm’s initiative to improve access to healthcare and wellness programs for persons with disabilities. He is a member of the Illinois SILC and the Vice Chairman of the Board of Directors for Access Living of Metro Chicago. Building Capacity for Full Community Participation: Some Lessons Learned Franklin / McPherson This presentation focuses on how CIL staff can build competencies and use technical assistance to help expand and build capacity in their communities to increase community participation of consumers. CIL staff will discuss experiences and successes in helping increase community capacity for full participation, and will share their experiences documenting their community-based efforts for evaluation and quality improvement. Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: Glen W. White, Ph.D., has been involved in the rehabilitation and IL field for over 30 years. He currently directs the Research and Training Center on IL at the University of Kansas and serves as Principal Investigator of the Research and Training Center on Community Living. Christina Holt serves as Associate Director for Community Tool Box Services at the Work Group for Health Promotion and Community Development. She helps support technical assistance, capacity-building training, and evaluation of the Building Capacity for Full Community Participation Project. Concurrent Workshops IV: Thursday, July 31, 10:30 am - 11:45 am Resources & Strategies on Managed Care Independence A Presenters from Managed Care Organizations and the IL Movement will provide participants with a range of resources and strategies on Managed Long Term Services and Supports (MLTSS) from the Centers' perspectives, including current best practices in managed care environments, valuation of services and contracts, enhancing service capabilities and reallocating resources for sustainability, and risks that may hinder sustainability or growth. Participants will learn how to prepare for managed care implementation, as well as effective strategies to define and leverage their CIL’s value with Managed Care Organizations. Target Audience: Executive Directors & Board Members. Knowledge Level: Experienced. Presented by: Merrill Friedman is vice president of Advocacy for Amerigroup. In this position, she works closely with self-advocates, consumers, advocates and stakeholders to ensure the diverse needs and preferences of people with disabilities and seniors are addressed in Medicaid managed care programs. Ms. Friedman oversees the integration of the independent living philosophy throughout Amerigroup programs, interactions and practices. Sex Is An Independent Living Skill Independence B & C This workshop will provide participants with research on sexuality education and its intersection with special education and how policy and practice both fall short in teaching young people with disabilities about sexuality and relationships. Participants will leave with the understanding of the way sexuality education is currently taught to youth with disabilities and how CILs can fill in the gaps by including topics on sexuality and relationships in their IL Curricula. This workshop will share games and activities, adaptations and accommodations for people with disabilities. It will also spark discussion among participants about this difficult, but important topic. Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: Alie Kriofske Mainella is the Youth Leadership Specialist at IndependenceFirst. She has been working with youth with disabilities for more than 13 years as an educator and advocate. Alie developed and grew the Youth Leadership Program at IndependenceFirst and now runs summer youth camps, support groups for both youth and parents, and teaches a variety of classes. Administration for Community Living - Aging & Disability Independence D&E The Administration for Community Living, in partnership with CMS and VHA, is developing a No Wrong Door LTSS system across the country with aging and disability networks. Eight states were awarded a Part A Enhanced ADRC Options Counseling grant program. ACL and guests will talk about the national vision for a NWD System for all populations and all payers. Target Audience: Executive Directors & Board Members. Knowledge Level: Newcomer. Presented by ACL and Partners. Elizabeth Leef is a Project Officer for the ADRC Networks at the Administration for Community Living and a former NCIL Policy Analyst. Mary Margaret Moore, Executive Director of ILC of the North Shore and Cape Ann, Co-Chair of the NCIL ADRC Task Force, NCIL Board Member, and President of the ADRC of the Greater North Shore, has been a life-long advocate for social justice and disability civil and human rights. Lindsay Baran, NCIL’s Disability and Aging Specialist, staffs the ADRC Task Force. She has advocacy experience with several disability organizations in both Chicago and Washington, D.C. Creating a New Training & Development Consulting Business within Your CIL Independence FGH & I Resource Development Track Creating a new business unit in your CIL to train and consult about IL values and further disability awareness has the potential to not only educate but can produce an entirely new revenue stream for individual IL Programs. Educating healthcare entities and businesses on Disability Awareness and Cultural Competence can be a supplemental service that can create new business relationships and alliances that can potentially lead to stronger community ties and mutually beneficial partnerships. Participants in this workshop will be able to learn about the steps in creating a new training and development business unit within a CIL and will have the opportunity to engage in a self-assessment and start an “Action Plan” in pursuing the potential of starting a new venture. Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: June Cowen has a unique background of expertise in corporate education and healthcare quality management and is the Executive Director of The Northeast IL Program, Inc. (NILP), based in Lawrence, MA. Dr. Burton D. Pusch, advocate and consultant, has focused his 25 year career on facilitating disability rights and has served as a consultant for numerous international, national, state, and local businesses and organizations. Mark Wheeler, Marketing & Communications Director for NILP, has over 25 years of experience in marketing, sales, and communications. An Intro to the NCIL ADA-Accessibility Survey Academy Project Franklin / McPherson This session will introduce NCIL’s newest training effort, the ADA-Accessibility Survey Academy Project, which will be rolled out in 2015 in honor of the ADA’s 25th Anniversary! The goal is to establish advocacy-driven networks of trained individuals within the IL Movement - with continuing education opportunities and regular communication regarding current issues. Come learn more about the ADA-ASAP, or to discuss how your Center may wish to be a future host site for an ADA-ASAP training event. Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: Mark Derry is President of Eastlake, Derry and Associates, LLC, which specializes in accessibility, universal design, and ADA consulting and training. Mark is an Affiliate ADA Trainer for NCIL and has served on the NCIL Board from 2000 - present. Concurrent Workshops V: Thursday, July 31 1:30 pm - 2:45 pm NCIL’s Leadership Panel on IL’s Transition to HHS Independence A Workforce Innovation & Opportunities Act Workshop This feature workshop of NCIL’s conference will provide you with in-depth information on the transition of the IL Program to HHS. Invited panelists include Sharon Lewis, Principal Deputy Administrator of ACL, Janet LaBreck, RSA Commissioner, and members of NCIL’s Rehab Act Subcommittee to explain the process and vision for the transition of the Independent Living program from RSA at the US Department of Education to the ACL at the US Department of Health and Human Services. Don’t miss this outstanding opportunity for an honest discussion of the transition planning. Target Audience and Knowledge Level: Appropriate for all Audiences. Show me the Money! Finding Resources for Affordable, Accessible Housing Independence B & C Show me the Money provides a detailed look at how housing resources are allocated and used, and offers advocacy tips to get a fair share of those resources for people with disabilities. Without access to housing, community integration isn't complete. You will leave the session with information about how resources come to communities, how to be more effective at getting those resources targeted appropriately, and how to find assisted properties in your community. Target Audience and Knowledge Level: Appropriate for all Audiences. Presented by: Ann V. Denton is expert on effective systems and interventions for persons with disabilities, including integrated systems of care, evidence-based practices, and housing. As Director of AHP’s TA Center, Ms. Denton is responsible for contracts with CMS, SAMHSA, VA. Ms. Denton provides training / TA to Money Follows the Person programs, conducts online training, and helped to develop SAMHSA’s Permanent Supportive Housing Toolkit. Ms. Denton develops training products and provides training and technical assistance in many areas, including housing development, funding and implementation of evidence-based practices, permanent supportive housing, services and supports for people with disabilities, and access to mainstream services. The Impact of the Disability Community on Elections Independence D&E Voter turnout by people with disabilities continues to be less than that of populations without disabilities, yet the disability community represents one of the largest minorities in the country. In this session we will review turnout data collected by Rutgers University and will hear from Democratic and Republican strategists who will discuss the implications of the of the data. You will leave this session with an understanding of the power that the disability vote could have on public policy and strategies to increase voter engagement in our own communities. Target Audience: Front Line Staff & Consumers. Knowledge Level: Newcomer. Presented by: Doug Kruse, PhD is a tenured professor at Rutgers University. He has conducted polls in voting and people with disabilities for more than 15 years. He lives in Princeton NJ. With his wife Lisa Sure, who teaches and publishes on disability rights. Mark Mellman is the president and CEO of the Mellman Group. He is a nationally recognized pollster and campaign advisor for the democratic party. Among his many clients is Senator Harry Reid. Advocacy and Funding: A Two Way Street Independence FGH&I Resource Development Track This workshop will examine the types of advocacy work at Access Living, the Chicago CIL, as well as the types of funding streams for Access Living's advocacy work. What types of funding support advocacy work? Can advocacy result in more funding for advocacy work? The changing economy, as well as the changes in advocacy, both play big roles. The workshop will include an overview of the advocacy work done by Access Living's fifteen-member Advocacy Department. Target Audience: Advocates & Project Directors. Knowledge Level: Experienced. Presented by: Amber Smock is the Director of Advocacy at Access Living of Metro Chicago. Ms. Smock serves on the Transit Access Committee of Chicago's Regional Transit Authority, is a Commissioner on the Illinois Deaf and Hard of Hearing Commission, is a co-founder of Feminist Response in Disability Activism (FRIDA), and is a member of ADAPT. Sexual Violence: What We Know and What We Need to Know Franklin / McPherson Sexual violence is a topic that does not receive as much attention as other forms of violence, yet we know that it happens all too often. Center Staff will provide information about sexual violence, discuss effects of this trauma, share stories from Centers that have worked in this field, and provide resources for increasing knowledge and facilitating healing. The NCIL Task Force on Violence and Abuse is identifying a few quality resources that can be used by CILs and their collaborators in the victim’s services field in addressing this issue both within Centers and with consumers. Target Audience: Appropriate for All Audiences. Knowledge Level: Experienced. Presented by: Jan Derry (West Virginia), Robbi Barrutia (Idaho) and Paulette Berry (Missouri) are all members of the NCIL Task Force on Violence and Abuse. Each person joined the efforts to address violence and abuse at different points over the past few years. With this, each of them brings a different perspective to the discussion of sexual violence. Jan Derry has been the co-chair of the NCIL Violence and Abuse Task Force for three years and is a NCIL Board member. She is the director of the Northern West Virginia CIL and serves as a member of her community’s Sexual Assault Response Team. Ms. Derry and her CIL were a collaborator with their state sexual assault coalition in developing a toolkit on this topic. Hotels & Lodging Grand Hyatt Washington 1000 H St. NW We will return to the Grand Hyatt Washington, located at 1000 H St. NW, one block from the Metro Center subway station in downtown Washington, DC. The Grand Hyatt is the official Conference hotel and virtually all events will be held here. A block of rooms has been reserved for NCIL Conference attendees from July 27-August 1, 2014 at a special rate of $269 single / double occupancy (plus tax of 14.5%). Triple and quadruple occupancy is available at $294 and $319, respectively (plus tax). Regency Club rooms are available at a variable rate, based on availability. You must be registered for the Conference to qualify for the NCIL room block and the discounted room rate. To make your reservations, call the hotel at 800-233-1234 (voice / TTY). Be sure to identify yourself as a NCIL Conference attendee to receive the discounted rate. Reservations received after July 7, 2014 will be accepted on a space availability basis. New - 45 Day Hyatt Guestroom Cancellation Policy Grand Hyatt room reservations cancelled after close of business (5:00 pm Eastern Daylight Time) 45 days prior to arrival will be subject to a non-refundable cancellation charge equal to one night’s room & tax. Cancelled reservations cost money. In order to hold the Conference each year, NCIL is contractually obligated to sell a certain amount of hotel rooms. For the last several years, late cancellations have caused NCIL to be billed for unused rooms. Last year, we narrowly avoided tens-of-thousands of dollars in charges because the hotel sold those rooms to other guests - outside of our group. That was a lucky coincidence. We have to take action to avoid these charges. Please remember that all Conference attendees are required to register for the Conference before reserving rooms at the Grand Hyatt. Please be absolutely sure you can travel to Washington, DC before booking your room. Marriott Metro Center Overflow accessible rooms are available at the Marriott Metro Center, 775 12th Street NW, just one block from the Grand Hyatt. The rate is $179 per night (plus tax of 14.5%). Reservations must be made by June 25, 2014. Please call the hotel at 202-737-2200 for reservations. Be sure to identify yourself as a NCIL Conference attendee to receive the discounted rate. Airports & Transportation - Visit www.wmata.com to plan your trip using public transportation. - All public buses, stations, and trains are accessible (when in operation). Super Shuttle: 800-BLUE-VAN Battles Transportation: 202-462-8658 Red Top Cab: 202-328-3333 Reagan National Airport (DCA) - Metrorail: The Metro stops adjacent to Terminals B and C. Take the Blue Line to the Metro Center station or the Yellow Line to the Gallery Place / Chinatown station. Both stations are 1-2 blocks from the Grand Hyatt. Fare: $1.35. - Red Top Cab: Call to reserve an accessible van 2-3 days in advance. - Super Shuttle: standard vans are available outside the Main Terminal. Contact them to reserve an accessible van. Baltimore / Washington International (BWI) - Public Transportation: Metrobus B30 departs BWI once every 40 minutes and travels to the Greenbelt Metrorail station. From Greenbelt, take the Green Line towards Branch Avenue. Depart at Chinatown / Gallery Place, 2 blocks from the Grand Hyatt. Fare: $5.35; allow 1+ hour for travel. - Taxicabs: Approximate fare to DC is $75. Call 410-859-1100 for details. - Van Service: Contact BWI Shuttle at 410-859-1100. Reservations recommended 4 days in advance. Dulles Airport (IAD) - Public Transportation: Metrobus 5A departs Dulles once an hour, between 6:30 am and 11:30 pm, and travels to the L’Enfant Plaza station. From L’Enfant Plaza, take the Blue or Orange Line to the Metro Center station. Fare: $4.35. Please allow 1+ hour for travel. - Red Top Cab: Call to reserve an accessible van 2-3 days in advance. - Super Shuttle: standard vans are available outside the Main Terminal. Contact them to reserve an accessible van. Access, Accommodations, & Resources Van Parking The maximum vehicle height for the garage at the Grand Hyatt is 6’ 5”. Grand Hyatt valet staff will park taller vehicles at the Renaissance Washington as space allows. This arrangement will be made available on a first-come, first-served basis and billed at the Grand Hyatt regular self-parking rate of $32 / night. Auxiliary Aids & Services CART (Communications Access in Real Time), sign language interpreters, assistive listening devices, personal assistants-, accessible materials, and other services will be provided upon request for all NCIL Conference activities. However, participants must arrange their own services for Hill Visits on Tuesday, July 29. Local Service Providers: Wheelchair and Scooter Rental and Repair ZASK Medical Supply - Alexandria, VA Phone: 703-354-1266 Email: zaskoo@erols.com Area Access - Falls Church, VA Phone: 703-573-2111 Roberts Home Medical - Germantown, MD Phone: 301-353-0300 Scooterplus / Lenox Medical Supply - Rentals only; delivery available Web: www.lenoxmedicalsupply.com Phone: 1-866 474-4356 or 202-387-1960 ScootAround - Rentals only; delivery available Web: www.scootaround.com Phone: 1-888-441-7575 The route of the NCIL March from the Grand Hyatt to the US Capitol is slightly less than one mile. Many conference attendees rent power chairs or scooters and have them delivered to their hotel to ensure they can participate. Local Service Providers: Personal Assistant Services ENDependence Center of Northern VA (CIL) - Arlington, VA Contact: Ruchika Lalwani, PAS Coordinator Phone: 703-525-3268; TTY: 703-525-3553 Email: ruchikal@ecnv.org Maxim Healthcare Phone: 202-545-6980 (711 for Relay) Email: clduvall@maxhealth.com - NCIL’s Personal Assistants will be available during conference hours only. - Use the information above to arrange your own personal assistant service during nonconference hours. NCIL Regions by State - Region I (1): Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont - Region II (2): New Jersey, New York, Puerto Rico, Virgin Islands - Region III (3): Delaware, District of Columbia, Maryland, Pennsylvania, Virginia, West Virginia - Region IV (4): Alabama, Florida, Georgia, Kentucky, Mississippi, North Carolina, South Carolina, Tennessee - Region V (5): Illinois, Indiana, Michigan, Minnesota, Ohio, Wisconsin - Region VI (6): Arkansas, Louisiana, New Mexico, Oklahoma, Texas - Region VII (7): Iowa, Kansas, Missouri, Nebraska - Region VIII (8): Colorado, Montana, North Dakota, South Dakota, Utah, Wyoming - Region IX (9): Arizona, California, Hawaii, Nevada, American Samoa, Guam, Northern Mariana Islands, Trust Territory of the Pacific Islands - Region X (10): Alaska, Idaho, Oregon, Washington What to Bring Conference participants often brave blistering heat, massive thunderstorms, and even chilly workshop rooms, all to bring our message to Capitol Hill! Remember to bring along the following items to ensure your comfort and safety: - large plastic bags to cover any batteries or electric devices that might be exposed to rain during the March and Rally, and duct tape to secure them; - attire appropriate for both very hot and chilly temperatures; and - any medications or assistive devices you may need during strenuous activity. Environmental / Chemical Sensitivities Fragrance and chemicals can be access barriers. To help make this conference accessible to participants for whom chemicals or fragrances are an access barrier, NCIL requests that you come fragrance free. Please refrain from wearing any scented products or washing with them. This includes clothing that has been laundered with fragranced detergent or fabric softening products. Additionally, please completely air out any dry-cleaned clothing before wearing it to the conference. Smoke can also be an access barrier. It is essential that we maintain a smoke-free environment. If you smoke, please use the designated smoking area located outside the Hyatt. Please refrain from smoking near any other doorways or paths of travel. The hotel entrance at 11th Street should be the least polluted with cigarette smoke and vehicle exhaust, although it unfortunately has steps. General Information Onsite Registration Please note that rates are per person and include materials, workshops, and Awards Luncheon. -NCIL Member $305 -Non-Member $430 -Daily Rate $210 -Luncheon Ticket $150 Personal Assistant Registration Policy: Personal Assistants are not required to pay the registration fee but should fill out a form to receive a badge. Personal Assistants are welcome to attend all conference events, including scheduled meals and receptions. Youth Registration Rate: NCIL is offering a reduced youth registration fee of $110 to all NCIL members 26-years-old or younger in order that young people with disabilities be exposed to the benefits of active involvement in NCIL and self-advocacy. Meals - Luncheon tickets will be included in your registration materials and collected at the event. Unregistered guests may purchase Luncheon tickets for $150. - Rally lunches will be available to all registered Conference participants. Individuals not registered for the Conference are not guaranteed a lunch at the Rally. Plenary Speakers Kathy Greenlee Administrator, Administration for Community Living Kathy Greenlee serves in the dual roles of Administrator of the Administration for Community Living and Assistant Secretary for Aging. Ms. Greenlee was appointed by President Obama as Assistant Secretary for Aging at the U.S. Department of Health and Human Services and confirmed by the Senate in June 2009. The Administration for Community Living (ACL) is a new federal agency operating within the Department of Health and Human Services. ACL brings together into a single entity the Administration on Aging, the Office on Disability, and the Administration on developmental Disabilities. ACL is charged with working with states, tribes, community providers, universities, nonprofit organizations, businesses and families to help seniors and people with disabilities live in their homes and fully participate in their communities. Assistant Secretary Greenlee believes that people with functional support needs should have the opportunity to live independently in a home of their choosing, receiving appropriate services and supports. She is committed to building the capacity of the national aging and disability networks to better serve older persons, caregivers, and individuals with disabilities. Kathy Greenlee served as Secretary of Aging in Kansas, and before that as the Kansas State Long Term Care Ombudsman. She also served as the General Counsel of the Kansas Insurance Department and served as Chief of Staff and Chief of Operations for then-Governor Kathleen Sebelius. Ms. Greenlee is a graduate of the University of Kansas with a Bachelor of Science degree in business administration and a Juris Doctor degree in law. Sponsors -Soldiers for Justice: Centene; AmeriGroup; Google -Champion: IndependenceFirst -Revolutionaries: United Healthcare; Comcast -Movers & Shakers: AARP; Verizon; Pride Mobility; Amgen -Activists: Mobility Ventures / MV-1; Accessible Bath Technologies; ABC Medical; American Association for Homecare; Arizona Bridge to Independent Living; HSC Foundation; National Collaborative on Workforce and Disability for Youth -Catalysts: ILC of North Shore & Cape Ann; RCIL -NCIL also thanks the following donors: Yoshiko Dart; AT&T; Bender Consulting Services, Inc. Advertisements Verizon Empowering others, sharing success. At Verizon, we envision opportunities to use our networks and technology to help solve some of society’s greatest challenges - like education, healthcare and sustainability. Since 2000, we’ve invested more than $650 million to help make our communities better places to live and work. Verizon is sharing its technology, resources and passion so that together, we can be even more successful. Check out our success at verizonfoundation.org. Share yours @VerizonGiving on Twitter. Image: A woman uses a tablet in a sunny, outdoor setting The Research & Training Center on Independent Living The Research & Training Center on Independent Living Joins NCIL in the Work to Prevail! Supporting CILs We assist CILs in finding new ways to enhance community living and participation for people with disabilities. Our research is designed to empower CILs to create programs, practices and policies that will enable IL to prevail - for generations now and in the future. Finding New Tools Our researchers are testing these new strategies to support community living: - A health promotion assistance tool - A training program for informal (unpaid) personal assistants - A novel approach to fair housing advocacy - A grassroots method to improve access to recreation & health care - A way to expand & document the capacity of CILs The Research & Training Center on Community Living (RTC/CL) is a project of the RTC on Independent Living. The University of Kansas 4089 Dole, 1000 Sunnyside Ave. Lawrence, KS 66045-7561 785-864-4095 TTY 785-864-0706 rtcil@ku.edu www.rtcil.org/cl Images: people with various disabilities working, cycling, and using sign language Center for Disability Rights CDR’s Community Supplemental Needs Pooled Trust is proud to Support the 2014 NCIL Conference! Center for Disability Right’s (CDR) Community Supplemental Needs Pooled Trust provides individuals with disabilities an alternative to the Medicaid “spend down” of sending in their excess income to their county Department of Social Services (DSS) office. The Trust is available to residents of New York State who have been determined disabled and wish to be enrolled in Medicaid, but has a monthly income or excessive resources that prohibits them from eligibility for the program. For more information on eligibility please contact CDR’s Pooled Trust! Logo: a lifted torch, surrounded by the words civil rights, integration, and independence 497 State Street Rochester, NY 14608 www.cdrnys.org (585) 546-7510 Working for the full integration, independence and civil rights of people with disabilities. Mobility Ventures / MV-1 Where Will You Venture? The MV-1 is the only mobility solution built from the ground up. Designed with best-in-class accessibility, durability, and proven safety, the MV-1 provides independence wherever your travels may take you. - Spacious front-row wheelchair access - Meets or exceeds all ADA guidelines - Integrated side-entry ramp stores under the floor - Independent driving solutions readily available - Fully FMVSS certified from the Original Equipment Manufacturer (OEM) with a bumper-to-bumper warranty - Produced by Mobility Ventures, a new wholly-owned subsidiary of AM General www.MV-1.us 1-877-MV1-FORU info@MV-1.us Comcast Comcast’s Accessibility Customer Support Center Customers can now reach our support team dedicated to resolving issues of importance to our customers with disabilities. phone: 855-270-0379 e-mail: accessibility@comcast.com chat: comcastsupport.com/accessibility web: comcast.com/accessibility Logo: Comcast Logo Image: a person using a tablet, pictured with service dog SKIL Resource Center SKIL Resource Center, Inc. - More resources for people with disabilities. Respect, Dignity, Freedom, Independence, Choices. It all happens in your home. 800-688-5616 www.skilonline.com Arizona Bridge to Independent Living ABIL is proud to stand with NCIL in the fight for human rights and equality. Together, we will PREVAIL! Pictured: Arizona Bridge to Independent Living’s Virginia G. Piper Sports and Fitness Center for Persons with Disabilities and the Disability Empowerment Center of Arizona (home to ABIL). Stop by ABIL’s website and check out our all new online version of the Disability Survival Guide. Image: Disability Survival Guide www.abil.org 602-256-2245